It's been a few weeks...time for an update!
Sam is doing fantastic! He had a cardiologist appointment last week. He weighs 16lbs 1oz, and is 26.5inches long. Dr. Cardis ran an EKG and an Echo. He said everything looked great and was functioning as best as could be hoped. He took us off the Lasix entirely (finally), but we will stay on the Lisinopril and Asprin indefinitely. He is going to start spreading out our appointments (the next will be in 2 months). He thinks we will make it a long time before we have to do the Fontan surgery. The only thing I hated was he said, "We want to give you as long as we can with him before that surgery." I don't know...draw your own conclusions for the many ways you can take that statement. But on the whole, Sam's heart is doing wonderful.
Sam's cough, however, will NOT go away. He has been coughing for almost 5 weeks now. No fever, not really even a runny nose, but he coughs and coughs and coughs all day and night. Especially at night. He will spend literally hours coughing ever 2 or 3 minutes, like he can't really clear his throat. Interestingly, this rarely actually wakes him up. It DOES wake Chris and I up...and makes sleeping really difficult for us. The doctors office originally told us there was nothing they could do for him if he didn't have a fever. You can't give kids under 4 years old ANY cough medicine anymore. But I'm getting super sick of this and plan on calling again tomorrow.
We drove down to Mobile last weekend so that I could attend a Bachelorette party for one of my bridesmaids. I had far too much alcohol but hanging with the girls was wonderful. Sam spent his weekend between grandmothers' houses. He was pretty happy the whole time, and didn't seem bothered by all the 'new' faces and people handing him around. He did great on the drive TO Mobile, but he was a total butt on the drive home. My sister came back to Macon with us, so she got to handle the crying baby in the back seat for a 7 hour drive that should have only taken 5.5 hours.
We are getting ready to do it all again this upcoming weekend. We are going BACK to Mobile for a graduation/anniversary party at Chris's parents house. Hopefully Sam will behave! Enjoy the new photos!
~Kathy
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