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That photo is from yesterday, when Sam finally started smiling for us! HOWEVER, Sam's having a not-so-happy day today. Kids who have this Glenn Surgery have really bad headaches for a few weeks because of a change in blood flow/pressure to their heads. Until last night, Sam didn't appear to be having any headaches (or pain, for that matter). HOWEVER last night was rough. We maxed our pain meds out, and then all they could give him was a sedative. That worked and helped him (and us) sleep, but I hate using a sedative. Then this morning he seemed to have a similar spell of headaches/pain. We used all our allowed pain meds, and then the doctor wrote an order for a one time morphine dose. That worked too, but I have concerns over how the rest of the day will go. He also is still receiving IV vancomycin and the IV site is really bothering him.

They said we might be discharged tomorrow, but I don't want to go home if he is still going to have these bad pain and crying episodes. We don't have morphine or sedative at home, so until we can go without it here, I don't want to leave. Other than that, and a little drainage out of one of the chest tube sites, Sam looks great and is medically very stable. He is down to .5L oxygen and should be on room air by tonight.

Keep the prayers coming for Sam, but please say a prayer for Chris's cousin who has found out that his colon cancer spread to his lung. Also say a prayer for my best friends sister, who just delivered her first baby girl at 24 weeks...the baby is just barely over 1 pound and is 9 inches long.

~Kathy